Saturday, February 14, 2009

Well, today wasn't our day either. We found out today that his MRI from last night showed that he had approx 30 sub clinical seizures (the ones that you can't see). They last about 10 seconds which isn't horrible. Today, he had 3 clinical seizures (ones that you can see) and 1 sub clinical seizures (picked up on the EEG--which he is hooked up to for the 3rd time on day 6). His clinical seizures are lasting longer though, so they are really trying to get them under control--the sooner the better. The neurology team started him on a new anti-seizure medication, so we are up to 3 treating just the seizures--not to mention the other stuff that he is on. I have to tell you, I am so tried at this point that I don't know what to do from one minute to the next. Jay continues to hear the positive (like today in the first 3 hours hooked to the EEG, Brady on had 1 sub clinical seizure which is drastic improvement--after the first 3 hours that is--see there is my negativity). It's just a struggle every day and the mood in the room can change like a drop of a hat. Tonight he has had some movement which means that he is becoming less and less sedated on the seizure meds. The doctors pulled on his eyelids to look at his pupils tonight and he was resisting them and trying to keep them closed which is also a good sign as he is uncomfortable and wants to be left alone which goes back to being less sedated. Maybe tmw will be our day. Once again, we appreciate all the things that people have done for us. I don't think we could fit 1 more balloon in this room!! Brady loves balloons though. His little bed is piled full with stuffed animals too.

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